Impressive “Children with Diabetes” community

One area I believe that online communities can really, really make a difference is with parents who are struggling with sick kids. Being up in the middle of the night, worrying and then being able to get online and chat/post about your concerns with other parents who are also up in the night worrying helps assuage those concerns. All those unanswered fears and questions and doubts that are disappear during daylight are impossible to ignore at 3am!

An example of a health community for children that has moved from portal and information dissemination to community and conversation is Children with Diabetes.

“Children with Diabetes is the online community for parents, kids, adults, and families living with type 1 diabetes.”

The forums have had up to 85 people at a time, there are polls (they give you the results of previous polls), organised Chats, headlines and links to articles on diabetes, studies and research, an impressive support Diabetes clinic section and so on.

But the most important quality I found was a sense of positivity and humour. Not only do the forums allow parents to share information (yes from time to time it will be incorrect, but that usually gets corrected, wiki-style), but there is a humour section – humorous tidbits and parent humour. And the I BELIEVE bracelet is for “I believe there is a cure”. A really fantastic use of content management makes it easy to find information on the home page. and look at this – Family Support Network.

The Family Support Network includes 1860 people and 1306 children from all 50 US states and 52 countries.

The Family Support Network is a database of parents, children, teens, adults, relatives and friends willing to exchange mail or e-mail about diabetes. If you’re struggling with a new diagnosis, have a question that you can’t seem to answer, or want to help others, this is the place. Once you’ve found a friend, click on their name to see their personal information (and photo) or click on the ‘Send a Message’ link to send them an e-mail.

Search for a Friend Find someone else just like you, whether you have diabetes or care for a child who does. Find yourself if you’d like to change your information.
Become Part of the Family Support Network Join the other parents, teens, kids, adults and friends.

These people really understand the value of community and people helping people. All in all, an important and worthwhile site!

Technorati Tags , Diabetes, Children with Diabetes, Children, Health

Laurel Papworth

Named by Forbes™ Magazine in the Top 50 Social Media Influencers globally, named Head of Industry, Social Media (Marketing Magazine™) and in the Power150 Media bloggers (AdAge™). CERT IV Training and Assessment certified trainer (Diplomas and Certificates etc) Adult Education. Laurel has manager Facebook Pages for Junior Masterchef, Idol, Big Brother etc. and have consulted on private online communities for banks Westpac, not for profits UNHCR & governments in SE Asia. Lecturer, social media, University of Sydney for 10 years and Laurel has 11,000 online students. Laurel Papworth personally connects to 6 million followers online and has taught around 100,000 people in the last 10 years how to be social media managers.

5 thoughts on “Impressive “Children with Diabetes” community

  1. I’ve been chatting and accessing the information at the Children With Diabetes website almost since it started. It’s THE BEST. Additionally, the conferences bring together cutting edge information and the latest technology all packaged together for many days of family fun. Siblings without diabetes enjoy themselves just as much as the children with diabetes.

  2. I too love the Children With Diabetes website, and have been an active member since shortly after my daughter was dxd 5 years ago. CWD has at times been my friend, saviour, sanity, sounding board, and yes sometimes enemy when I hear something I really don’t want to. There is almost always someone, especially another parent, online to talk to. The positive support is unparalelled anywhere else, and the information contained within the website is the most reliable I’ve found.
    Being in Australia I’ve not yet had the opportunity to attend one of the conferences, but I live in hope 🙂

  3. My son was diagnosed with type 1 diabetes 3 years ago at the age of 8. We live in a small town and he is the only D-child in school and around town (hard to believe)so we didn’t have much support or informations available to us at that time.Our D-nurse turned us onto the Children with Diabetes site and we absolutely love it. When I am up at 3am it’s nice to know that there are parents somewhere up there who are doing the same thing and they understand

    Bibiana Bailey’s last blog post..Fun and Family Friendly Pools of Las Vegas Strip

  4. Proper management can give you many years of healthy living. Diabetes management starts with a visit to your doctor. First, finding out you have diabetes, what type you have
    then arming yourself with as much information as possible about the diabetes you are diagnosed with. It could help kids with diabetes.

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